Top 10 Things Disabled Households Need: Part 2 of the Medically Fragile

Regardless of which illnesses, disability or physical handicap with limited adaptability are present in the home, the needs always outnumber the resources available. Whether it be mental energy to return phone calls and sort mail, or enough reserved to cook a hot meal and scrub the toilets, disabilities causing frailty can impede the ability to... Continue Reading →

Understanding the Emotions of the Disabled &Medically Fragile Home (Part 1) It is difficult to express what it is like to live as a disabled person. To describe the plight and daily life of households where every member is either stricken with illness, physical handicap, have a significant cognitive disorder or mental health condition. Many... Continue Reading →

Disability VS Handicap: Can We Really Say Which is the Worst?

If there is one issue that irks me the most in regards to fragile households, it's the constant bickering of who is worse, more sick, or the least functional. It certainly is not a commonplace conversation occurring in the average home. Most families are not faced with those comparisons at all. However, within the community... Continue Reading →

Conquer the Burnout of Illness Related Tasks- 10 Helpful Starter Tips and Tools

I love to find collective lists that give me good ideas of how to conquer something in my life. Especially since I'm that lady who is griping at her kids about moving her glasses without permission annoyed everyone is laughing. Until that is, I go to hold my head in frustration and feel all three... Continue Reading →

Mending Mental Mayhem: Part Two-Emotional Delegation

It continues to amaze me how impactful a tired mind can be when managing a house full of chronically sick people. It is a marathon for the emotional structures within oneself and within the family. I also knew I needed to take a few steps back to gather some energy for what is ahead for... Continue Reading →

I’ve Got Mad Skillz – Anger Regulation in Fragile Homes

There are many ways to describe people who have amazing and sometimes uncanny abilities. Typically we all know one person who has some variety of oddball talent that is completely useless, yet privately we are jealous. My father, David Juers, has become a very good photographer in retirement and it's stunning to see his creative eye... Continue Reading →

Mending Mental Mayhem – Abuse and Disability (Part-One)

I have long been a believer that our mind is the most important part of our health. In some ways, the brain is a slave to our mind. That may seem like a stretch, but when the brain is functioning, and commanding legs walk, hands move, eyes turn left, one would assume all is well... Continue Reading →

The Fragile Home – Resource & Restoration

For many people, nothing brings more hope for relief after a long frustrating week like Fridays. Thank goodness for Friday right? Well, chances are if you are a disabled household, or caring for a family with medically fragile members in chronic crisis, Friday does not carry the same joyful anticipation of rest, healthier households look forward to.  Especially if... Continue Reading →

My Guts Are Trustworthy

  Help Haven Guide: Tuesday Article - January 23rd, 2018 The overwhelming job of managing a household full of medical problems is rough. Days melt together, weeks merge and before you realize it another year has passed. I get frustrated every day seemingly when trying to coordinate all the medical appointment calls, follow-up lab reports,... Continue Reading →

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